Ore, 19 from Barry, Wales

Ore is a young carer who helps look after her younger sister Ire who is 14 and has Sickle Cell Disorder. Ore was the main carer for her mother, who passed away two years ago in October 2019 following many years of illness. Ore lives with her father and her sister. Ore is a passionate advocate for families who live with Sickle Cell Disorder – she wants to breakdown the stigma that can sometimes affect people with Sickle Cell Disorder. She also wants to highlight just how serious the impact of Sickle Cell Disorder can be on people’s lives and give people from all walks of life a better understanding of the condition. Ore has been supported by Friends of Cymru Sickle Cell and Thalassemia through their youth project and their home support service.